Involvement resources

Your Rheum & BANNAR practical guide to involving young people in research.

This brief guide sets out key components of planning and undertaking research involvement activities with adolescents and young adults. Includes activity ideas, ice breaker games and FAQs.

GenerationR Alliance & eYPAnet toolkit 

This toolkit is designed to help researchers/health professionals or similar professionals set up and run a Young Persons Advisory Group, allowing the voices of children and young people to be heard in research 

Young Researchers: Guidance & toolkit by Louca-Mai Brady and Berni Graham 

This Guidance and an associated Toolkit were commissioned by Barnardo’s to provide researchers, project workers and others with clear guidance and tools to use when supporting children and young people from a diverse range of backgrounds to be young researchers.

Imperial College London – Patient & Public Involvement course

This public involvement training is now available through an online course on the Coursera platform. This course is entitled ‘Public Involvement in Research’ and is aimed at researchers but also suitable for patients and the public (18 and over). Over four weeks you will learn how patients and the public can be involved across the research cycle. This ranges from identifying research topics important to patients, through to disseminating important findings to community groups.

Useful organisations

INVOLVE

INVOLVE is funded by the National Institute for Health Research (NIHR) to support public involvement in NHS, public health and social care research

About INVOLVE supporting public involvement in NHS, public health and social care research | INVOLVE

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GenerationR Alliance

GenerationR Alliance is a National Network of Young People’s Advisory Group’s (YPAGs) based across the UK.

VIDEOS

Videos created by young people talking about involvement in research

KidsCan, University of British Columbia, BC Children’s Hospital and the Child & Family Research Institute in Vancouver 

KidsCan is a youth research engagement initiative which directly involves youths aged 14-17 as advisors and partners in the research and development of innovative mobile-based solutions to the health challenges they face. They are active participants in transferring scientific knowledge from clinicians and engineers to young people, rather than being passive receivers of knowledge.

National Children’s Bureau 

NCB’s young research advisors contribute their views on various research topics. This video explains the role they play and how they help the NCB Research Centre to see research subjects from a young person’s perspective (2012).

Nuffield Council on Bioethics