Support to involve, engage, and recruit people with arthritis in research

We want people living with arthritis from diverse backgrounds with experiences to be participants, active partners, and leaders in research. Here’s how you can work with people who have lived experience of arthritis in your research.  

Whilst engagement and participation are valuable ways of interacting with patients and the public, we consider involvement to be the gold standard that you should strive to implement throughout the course of your research project, from inception to conclusion. Ideally, all three elements should be incorporated.  

We hope you enjoy using our PPIE Hub!

You can expect to find information on the support we provide, collated resources to save you having to track them down and case studies of involvement 'in practice' to bring things to life.

A reflective note about some of the terminology used throughout: There are many different preferred terms that people use when co-creating together with people living with arthritis. We have used the terms 'Research Partner' and 'Patient Partner' within this hub. Sometimes we have also interchanged the words research 'subject' and participant' which reflect the terminology used across the sector. It can be valuable in PPIE partnerships to discuss and agree what terms your research partners would prefer to use, as different groups prefer different terms.

We have resources to help you embed involvement at all parts of the Research Cycle 

We can also give you tips of how to go about Finding people with arthritis to participate in your research | Versus Arthritis